Children's Continuing Care

Some children and young people have very complex health needs, which may be the result of congenital conditions, long-term, life-limiting or life-threatening conditions, disability, or the after-effects of serious illness or injury. These needs may be so complex that they cannot be met by services which are routinely available from GP practices, hospitals or in the community. A package of additional health support may be needed and this is usually known as continuing care. This differs from adults continuing healthcare provision in terms of eligibility. 

The latest national guidance is “National framework for children and young people’s continuing care” from 2016. This guidance provides:

  • A definition of continuing care, and the roles and responsibilities of CCGs.
  • A step-by-step guide to the continuing care process of assessment and decision making.
  • The Decision Support tool (DST) for children and young people to support local determination of a child or young person’s needs.

The guidance that in regards to CCG duties:

  • CCGs have a legal responsibility for securing to a reasonable extent the health care which an individual needs, and this guidance is about the process which should be followed for the equitable discharge of that responsibility for children and young people with complex needs.
  • The 2016 guidance is an update of the 2011 guidance, revised to reflect changes to special educational needs and disabilities (SEND) requirements outlined in the Children and Families Action 2014 and subsequent SEND code of practice.
  • In Newham we have developed a children’s continuing care policy based on the above guidance and our local processes. We hope this makes the process of children’s continuing care clear and transparent for local families.

Who to contact

Website
ELFT - Community Nursing Team

Other Details

Availability

Age Ranges
0-19
Referral required
Yes
Downloads